| Name |
: |
Judy |
| Date/Time |
: |
2009-10-05 20:35:57 |
| Message |
: |
Hi Jun,
I have read your website and wanted to share that my brother, Michael, has lubag. My mother is part filipino and her dad we discovered must have had lubag and died of it many years ago. My mother is a carrier, so am I.
My brother has had it for about 5 years now. It is getting worse every year. He is 50 now and he is very thin from all the shaking of his legs/body. His speech is very impaired and his neck is twisted.
We discovered this through Dr. Evidente who tested my brother in Arizona. |
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| Name |
: |
Jenn |
| Date/Time |
: |
2009-04-23 03:07:34 |
| Message |
: |
Hello Jun and family. I have posted a link to your website on my facebook page for my friends (especially my filipino ones) to see. I have hemidystonia that began in the foot and hand as a child. For 15 years I dealt with minor focal dystonia. At 29, it spread throughout the right side of my body and I at times am unable to walk without assistance and frequently limp. I live in the US and receive state assistance to receive my klonopin. I feel for your struggle and wish you the best! www.whoisjennmarie.com |
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| Name |
: |
jake jones |
| Date/Time |
: |
2009-03-05 11:29:45 |
| Message |
: |
i am from the united states, and my fiancee's father has this disease so i am researching it...hope you make it ok... |
|
| Name |
: |
Jun Buenaflor |
| Date/Time |
: |
2008-10-19 18:59:46 |
| Message |
: |
Miss Rice and Kylie, thank you very much for your participation, me and my family are very grateful...may God bless you too and your family... |
|
| Name |
: |
Kelly Rice |
| Date/Time |
: |
2008-10-18 17:07:18 |
| Message |
: |
Hi Jun...my daughter, Kylie, sang in your fund raiser in East Texas and had a great time. We all learned so much about dystonia, which we had not heard of until then. We have continued to pray for you. We will continue to try and help you by getting people to go to your site and donate. May God bless you and your family. |
|
| Name |
: |
Jun Buenaflor |
| Date/Time |
: |
2008-10-01 05:22:13 |
| Message |
: |
Linda, that you very much, it means a lot to me and my family...thank you... |
|
| Name |
: |
Linda |
| Date/Time |
: |
2008-09-22 20:58:16 |
| Message |
: |
Jun,
My daughter signed up for the singing contest just because she wants to be a singer. We had no idea then what it was all about. Now that we do, we will do all we can to raise money for you. We will spread the word about your story. Stay strong! We will keep you and your family in our prayers, daily.
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|
| Name |
: |
kenneth |
| Date/Time |
: |
2008-09-11 22:38:32 |
| Message |
: |
you have to be strong to deal with the things that you have and i hope that my participation in "Singing Stars for Dystonia" may have the effest that i pray it can. im sure you have inspired many through your struggle. its no use living if you cant help someone else and thank you for giving me the opportunity to work with others. see you at the show |
|
| Name |
: |
Analen |
| Date/Time |
: |
2008-08-08 09:27:35 |
| Message |
: |
Hi! nung jun, muzta k na? indi lng nung mgdula paglaum ah....God is always with you.... |
|
| Name |
: |
Hannes |
| Date/Time |
: |
2008-07-03 11:55:34 |
| Message |
: |
Found your site in google, and it has a lot of useful information. Thanx.t |
|
| Name |
: |
Vince |
| Date/Time |
: |
2008-07-03 06:32:08 |
| Message |
: |
Cool guestbook, interesting information... Keep it UP. excellent site i really like your stuff.. |
|
| Name |
: |
Timmy |
| Date/Time |
: |
2008-06-19 14:46:56 |
| Message |
: |
Very good web site, great work and thank you for your service. |
|
| Name |
: |
judy |
| Date/Time |
: |
2008-06-17 08:54:47 |
| Message |
: |
Thank for making this valuable information available to the public. |
|
| Name |
: |
cholo |
| Date/Time |
: |
2008-03-25 21:54:14 |
| Message |
: |
hi jun! ngayon ko lang nalaman ito.. sa pagbro-browse ko lang nakita. nagulat naman ako. san ka na ngayon? lakas lang ng loob... at pagdadarasal.
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|
| Name |
: |
nang chit |
| Date/Time |
: |
2008-03-23 08:07:24 |
| Message |
: |
happy easter jun...i will be in iloilo this coming mar26-28 for some important activity...i txted tita, abi ko nasa dumangas ka...she gave me your number... |
|
| Name |
: |
Jun Buenaflor |
| Date/Time |
: |
2008-03-12 05:01:24 |
| Message |
: |
thank you esther, watts (mary) would sometimes talk about u, she said that your father is a teacher at sps |
|
| Name |
: |
Esther Marie Sazon |
| Date/Time |
: |
2008-02-27 05:00:22 |
| Message |
: |
Elow poh.... My prayers will always be with you.. I know that I'm not that familiar to you but to tell you honestly I am one of the classmates of watts buenaflor.. she is a good friend of mine.. i hope God will always bless you.. teecee.. |
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| Name |
: |
John |
| Date/Time |
: |
2008-02-11 09:53:32 |
| Message |
: |
Nice! Thanks! |
|
| Name |
: |
Bernadtte Vasquez |
| Date/Time |
: |
2008-02-04 15:11:37 |
| Message |
: |
I have dystonia half philipino and spanish
i feal for you i understand dystonia is pain in the ass focal and muscle spasm each month a leaving hell. may god bless you.
Bv |
|
| Name |
: |
Jun Buenaflor |
| Date/Time |
: |
2008-01-23 00:38:57 |
| Message |
: |
thank u eric... |
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