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FIGHTING
DYSTONIA
LINKS

01. National Institute of Neurological Disorders and Stroke (NINDS)
02. Dystonia Medical Research Foundation (DMRF)
03. Bachmann-Strauss Dystonia & Parkinson Foundation
04. We Move
05. Care4Dystonia
06. The National Spasmodic Torticollis Association
07. Benign Essential Blepharospasm Research Foundation
08. Sample Video of the documentary Twisted, its about Dystonia
09. Dystonia Monologues by Vynne Frederick
10. A Good Man gets a Bad Break by Malcolm Roy Trevena
11. Dystonia Diary
12. Quest of a dystonic buddhist neuroscientist
13. Surviving Dystonia
14. Filipinos Living with Parkinson's (FLIP)
I NEED YOUR HELP...

Hello, I'm Jun Buenaflor, I'm suffering from an illness called X-Linked Dystonia-Parkinsonism (XDP). It is a devastating neurological movement disorder characterized by involuntary muscle contractions that force certain parts of the body into abnormal twisting, contorted, sometimes painful, movements or postures. The causes of Dystonia are unclear. There are few treatment options for Dystonia patients; no known cure exists for the disease. * View video.

I hope to undergo Deep Brain Stimulation to stop XDP but I do not have insurance so its a big problem, I need your help.

* The video file is 6MB+ so you will need DSL or any Broadband connection to download it faster, the video is about Dystonia and Deep Brain Stimulation (DBS). You will need Windows Media Player to play the video.

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